I serve on the advisory boards of the lay advocacy groups American Brain Tumor Association (Chicago) which provide critical information to patients with brain tumors and advocates for patient aids and research. I serve on the founding advisory board of the Central Brain Tumor Registry of the U.S., which provides epidemiologic data on brain tumors that is used by lay advocacy groups in petitioning for health care. I have been an invited speaker at lay advocacy groups such as The National Brain Tumor Society in, e.g., New York (NYU) and Florida. I also served on the board [PDF] of the Pioneer Institute, which is engaged in free-market approaches to educational improvement including the charter and voucher school initiatives, as well as biotechnology education.
Patient Advocacy Materials
- 1986 — Pseudotumor Cerebri: The Syndrome of “Benign” intracranial hypertension. Part I.
Co-author
Primary Care and Cancer - 1986 — Pseudotumor Cerebri: Management of “Benign” intracranial hypertension. Part II.
Co-author
Primary Care and Cancer - 1988 — Paraneoplastic Neurological Syndromes
Co-author
Cancer Investigations - 1991 — Primary Central Nervous System Lymphoma: Diagnosis and Treatment
Co-Author
Neurology Chronicle - 1998 — Perfusion Magnetic Resonance Imaging to Assess Brain Tumor Response to New Therapies.
Co-author
Cancer Control, Moffitt Cancer Center, Tampa, FL - 2006 — Primary lymphoma of the nervous system.
[Review] [108 refs]
Co-author
Cancer Journal, ABTA - 2009
UpToDate sections on systemic and primary central nervous system lymphoma.
Patient Education Material for the Lay Community
I have authored articles for the lay press on brain tumors. These have been used by advocacy groups — including the ABTA, above — in patient education. I have appeared on radio and television to discuss neurologic ailments, including focal dystonia and brain lymphoma.
Recognition
- 2006
Medal of Recognition for presentation in support of EEC application for proton beam therapy machine.
Bilbao, Spain - 2006, 2007
Boston Magazine, “Top Neurologists in Massachusetts“
